RESEARCH STUDY PARTICIPATION
All of the research studies listed below have been reviewed and approved by AED. Researchers submitting studies to post on this website must provide details of the study to AED's Electronic Media Committee for review.
Anorexia Nervosa Genetics Initiative (ANGI) (Posted March 12, 2014)
If you have suffered from anorexia nervosa at any time in the past or currently, you can help.
The Anorexia Nervosa Genetics Initiative (ANGI) is the largest and most rigorous genetic investigation of eating disorders ever conducted. Researchers in the United States, Sweden, Australia, and Denmark will collect clinical information and blood samples from over 8,000 individuals with anorexia nervosa and individuals without an eating disorder.
ANGI represents a global research effort to detect genetic variation that contributes to this potentially life-threatening illness. The goal of the research study is to transform our knowledge about the causes of eating disorders to work toward greater understanding and ultimately a cure.
If you have suffered from anorexia nervosa at any point in your life, you can help us achieve this goal. Your contribution would include a brief 30-minute interview and a blood sample. If you have never had anorexia nervosa, but still want to contribute, we invite your participation as well.
Only with your participation can we achieve our goal of eliminating this devastating illness.
Participants receive a $25 Amazon gift certificate. For more information call 919-966-3065 or visit www.unceatingdisorders.org/angi.
Research Study: Couples/Bulimia Nervosa Study (Posted 2/27/14)
Your voice can help improve treatment! The UNC Center of Excellence for Eating Disorders is recruiting couples in which one or both partners have bulimia nervosa (BN) or binge-eating disorder (BED) to participate in a study about their experience with eating disorders in the context of their relationship. We aim to use the voices of those affected by eating disorders to develop couple-based interventions for BN and BED to improve treatment and enhance the recovery process for couples.
Couples from around the world can participate. The entire study, which includes a brief interview and online survey, can be completed from home.
How do you know if you or your partner might have BN or BED? If you or your partner experience episodes where eating feels out of control (for example, once you start eating you can’t seem to stop) or you feel compelled to exercise, restrict, or use extreme measures to control weight or shape (like purging, using laxatives, or exercising intensely), you or your partner may have BN or BED and be able to contribute to the study. Other signs of these disorders include feeling guilty or ashamed after eating, eating in secret, having critical thoughts about your body, eating large quantities of food in a short period of time, and rapid weight changes.
Couples receive a $25 Amazon gift certificate for participation. Additionally, free couple-based eating disorder treatment may be offered to couples who partake in the interview.
Additional information about the study can be found here: http://www.med.unc.edu/psych/eatingdisorders/our-research/binge-eating-studies
Research Study: Women with Anorexia Nervosa
The Neuroendocrine Unit at Massachusetts General Hospital is offering a variety of research studies for women with anorexia nervosa. If you are interested in participating, take this brief pre-screening survey.
Research Study: Genetics
This study involves a one-time visit, involving no treatment. This study investigates the genes potentially involved in the development of anorexia nervosa, in hunger and fullness, and in bone loss. We welcome all women who have ever been diagnosed with anorexia nervosa, ages 10 and up. The visit takes about 1-2 hours and involves a blood draw, saliva collection, and a few questionnaires. This study can be done in combination with any of the other studies. The compensation is up to $25.
Research Study: Adult Bone Loss Treatment
This study involves 10 visits at Massachusetts General Hospital (MGH) over the course of a year and is evaluating the effects of two different medications on bone density and bone strength in women, ages 18-45, with anorexia nervosa. The two medications being studied are IGF-1 and Actonel. Participants must be receiving estrogen over the course of the study, and a standard oral contraceptive or estrogen patch can be provided through the study. The visits involve bone density scans and CT scans, blood draws and questionnaires. Study participants are compensated up to $600 for this study, as well as travel costs.
Research Study: Adolescent Bone Loss Treatment
This study is a 12-month study for girls and women ages 14-21, and is evaluating the effects of IGF-1 treatment on bone density and bone strength in girls and women with anorexia nervosa. Each study participant will receive an estrogen patch and be randomized to receive either IGF-1 or placebo. The visits involve bone density scans and CT scans, blood draws and questionnaires. Participants will be compensated up to $750 for this study, as well as travel costs.
Research Study: Anxiety and Depression Treatment
This study involves 7 visits at MGH over the course of 8 months and is evaluating the effects of a natural hormone treatment therapy on anxiety and depression in women with anorexia nervosa. The hormone being studied is low-dose testosterone and is administered via a transdermal patch. The study increases testosterone levels, which are low in women with anorexia nervosa, within the normal range for healthy women. The visits involve blood draws, questionnaires, a bone density scan, MRI scans, and a CT scan. Participants will be compensated up to $750 for this study, as well as travel costs.
Research Study: GI Symptom Treatment
This study involves 7 visits over 6 weeks and is evaluating the effect of a natural hormone, called ghrelin, on gastrointestinal symptoms in women with anorexia nervosa. The visits involve blood draws, questionnaires, MRIs, and breath tests. Participants will be compensated up to $1000 for this study, as well as travel costs.
Research Study: Bone Imaging
This study involves 4 visits over the course of a year and is evaluating skeletal health in women with anorexia nervosa who are not taking any hormones, including birth control pills. This study involves no treatment. The visits include blood draws, MRI, CT, and bone density scans. The compensation is up to $300 for this study, as well as travel costs.
Research Study: Adolescents with Bulimia Nervosa
Researchers at Columbia University Medical Center are conducting an NIMH-funded study aimed at understanding brain development in adolescents with Bulimia Nervosa. We are recruiting girls, 12-16 years old, who binge-eat and purge. Participation involves completing interviews, games and puzzles, and an MRI scan. No cost treatment will be provided to girls in need. Compensation (up to $400) will also be provided for participation. The study takes place at the New York State Psychiatric Institute, 1051 Riverside Drive in Manhattan.
For more information, please call our Eating Disorders Clinic at (212) 543-5739 or visit our website, http://teenbulimiastudy.org
RESEARCH STUDY POSTING GUIDELINES
Research Recruitment Posting Procedure:
All requests must be approved by AED's Electronic Media Committee. Requests regarding industry sponsored research recruitment will also be forwarded to the Industry Liaison for review. Studies must have direct relevance to eating and/or weight-related disorders.
- All requests for research recruitment advertisement must be accompanied by human subjects or ethics committee approval, study abstract, author list (which must include an Academy member), and the proposed text of the posting.
- Postings are free of charge for AED members, and $75 for non-members. Postings remain on the AED website for 6 months. A notification that a new study has been posted will be sent out via the AED listserv.
- This page maintained by: Electronic Media Committee
- Last Updated: 26 March 2014